|
Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
|
Last April when I first had all the severe symptoms like couldn t even lift the duvet to get out of bed etc my first man ( He was so bad I can t give him a title ! ) thought I had reactive arthritis. Anyway my GP was treating me accordingly so all I was on was diclofenac and anti-biotics and all the painkiller which of course didn t touch it. To get to the point I started to put an ointment on my painful joints mainly my wrists and shoulders you may all know about it - its called Tiger Balm the RED one which is stronger than the white. For me it did calm down the pain and at that time enabled me to at least fall asleep at night for a while.( you can buy it from Sainsbury s pharmacy for about £ 4.50 )
While I m here I would be pleased for a bit of help, I get very painful hands and wrists I wear the foam hand/wrists supports and stretchy bandages to support the joints , but I wonder if they only sort of put pressure on the " inflamation " so to speak and cause more harm and pain possibly and don t do the job they are supposed to do - it is difficult to know what helps sometimes.
Many thanks Julia x
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
|
Hi ?Julia - just a word of caution - people on here warned me of this but I was recently referred to an occupational therapist - as people on here suggested - and she told me off for wearing inappropriate splits, she said I was lucky not to have ended up with carpal tunnel syndrome. I don't think the same would apply to the softer supports but I'm glad I took forum advice and got to see the OT. I didn't know you could just ask but I just mentioned it to the rheumy nurse and she referred me straigh away. They have given me all sorts of 'top tips' as well as proper splints and resting splints. Some wise folk on this forum you know!
Julie
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
|
Hi Julia
I agree totally with Julie. It's always best to ask the OT what you need by way of support, or you could end up doing more damage.
Take care
Love Jeanxxx
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
|
Hello welcome id say ask for a referral to a occupational therpaist,i did they make sure give you right sort of supports and you woudlnt pay either. i only have resting splints and im not to wear them when joints red hot as can cause damage by compressing inflammed joints. and only for 1 hour at night. for now i was told to refrain from usign anythign elses as still a youngster to make sure msucles are used and dont become weak. it is an individual thing. as to what would suit. all best melly cuddly cats make my world seem so much more fun
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
|
Hi Julia, sounds like everyone has given you good advice. I have carpal tunnel as well as the RA, and am supposed to wear the resting splints, but I find them really uncomfortable. The OT is the best option, good luck BARBARA
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
|
Dear Julia,
Most definitely asked to be referred to the OT so you can have specially made splints and supports made for you. I am sure they can cause extra pressure and therefore will become detrimental to your RA.
When I first had RA I was only 8 and a half, 30 years ago nearly!, and they would put the tightest, grossest white bandages around each knee, so tight I could barely move and they made me so unhappy and more sore. I was absolutely sure they did more harm than good!
Love,
Amanda
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
|
Interesting read, this one. I've been using tubigrips and neoprene wrist supports  soI will defnitely ask rhuemy nurse when i see her. Thanks everyone for the advice Maria x
|
|
Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 2,127 Location: Thornton Cleveleys
|
Hi Julia Agree with others, you could be causing yourself additional problems. You need to maintain function and unsuitable supports may restrict this allowing the joints to stiffen up and could, in the long term, actually lead to deformities in vulnerable joints. Correctly positioned supportive splints will rest and mobilise the joint as necessary. Stretchy crepe bandages and tubigrips are great for minor injuries, strains etc. but not adequate for diseased joints as they quickly lose their supportive qualities; neoprene, whilst soft and warm, is best used for temporary support in sporting activities for its flexibility! Sometimes things we think are actually doing us good turn out to be doing exactly the opposite. Caution is key and the O.T. will be able to offer expert advice relating to your specific problems. What I don't know about splints ... years of hand and wrist problems I guess!! Good luck Julia and Maria Lyn x
|
|
Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
|
Morning !
Thank you all so much for the very helpful advice, what would I do without you all. Its quite incredible really nobody as even mentioned an OT, I ve got to see my doctor shortly and take this up with him. I have been wondering if I have been doing more damage, as you say if you have supports on too often you re not maintaining muscle straight with all the juggling you need to do, might as well be in the circus !!
All the best to you all, Julia xx
|
|
Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
|
Julia17 wrote:Morning !
Thank you all so much for the very helpful advice, what would I do without you all. Its quite incredible really nobody as even mentioned an OT, I ve got to see my doctor shortly and take this up with him. I have been wondering if I have been doing more damage, as you say if you have supports on too often you re not maintaining muscle straight with all the juggling you need to do, might as well be in the circus !!
All the best to you all, Julia xx Sorry I meant muscle strength, that will teach me to make my writing bigger in future ! [size=6] Julia x
|
|
Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 2,127 Location: Thornton Cleveleys
|
Julia17 wrote:[quote=Julia17]... all the juggling you need to do, might as well be in the circus !! I thought this was a circus Good luck Julia, hope you get a result and the doc points you in the direction of the OT, promptly!! Lyn x
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 327
|
Hi Julia Lots of good advice on here My rheumatologist has never mentioned OT to me, either. The only time I've had any contact with OT was following an operation, when they gave me a perching stool which wouldn't even fit in front of our sink! However, my rheumy gave me splints for my hands and wrist when I first saw him, it may be worth asking your rheumy about this? Anthea x
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
|
I found that wearing the splints from the OT were really useful, they keep your hands in position when you do tasks.
I hope you can get help from your OT.
Lyn
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
|
Hi Julia, What an interesting post. My RA is mainly in my wrists and doc thinks I have a touch of carpal tunnel too. Got some splints of OT told first to use them to support joints when doing activity but not rely on them and not to use them at night, otherwise I would lose strength. Well then 6 months ago bearing in mnind it was non stop problems with wrists since before diagnoses in 07 and was mainly complaining about my wrists I was told it was good to rest them using splints at night when in flare. As I couldnt write so started to use keyboard and was using the splints as a support and was extremely painful but thought I was doing right. Now looking back the reason why my wrists and hands were hurting was because the splints were making it worse even though I had a larger splint to accommodate the swelling. So thanks for the post I will now just stop activity instead of trying to finish a task (so frustrating). By the way i used these tennis wrists supports (flannel type tube) as I thought they were more discrete outside as hate the bit NHS splints but OT told me not too as they were too tight and making it worse when I complained about my wrists. My biggest moan is the inconsistency of advice from OT I have had since being diagnoses. I know that RA is different to each individual but for crying out load if someone whose RA predominately effects the wrists surely they can give a better management strategy from the start. I was also told not to exercise my fingers and then told I have to! Also if anyone has tingling fingers or dead hands which I have had it helps not to lean or bend the elbow! So I agree that the forum is a mine of info in getting tips how to manage our illness.
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 312
|
Hi all! 'Just had to say that anyone experiencing severe wrist/hand pain with eventual numbness needs ELECTRICAL TESTING for CARPEL TUNNEL SYNDROME. I had to wait years for this test, wearing all the dreary miserable splints, day and night, in agony for a lot of the time! I had each wrist operated on seperately, 8 months apart, under local anaesthetic and it has changed my life! Prior to the surgeries, I could barely post on this site because of the pain when typing, etc. If there is any chance that a persons pain is being caused by Carpel Tunnel problems, it is so treatable with surgery and can be repeated more than once should it ever come back! Sometimes I think that because we have R.A they forget to check us out for Carpel Tunnel problems! I even had developed finger clawing because mine was so advanced! All better after surgery and loook more like a normal person again. best wishes, Fiona
|
|
Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
|
MrsWoman wrote:Hi Julia, What an interesting post. My RA is mainly in my wrists and doc thinks I have a touch of carpal tunnel too. Got some splints of OT told first to use them to support joints when doing activity but not rely on them and not to use them at night, otherwise I would lose strength. Well then 6 months ago bearing in mnind it was non stop problems with wrists since before diagnoses in 07 and was mainly complaining about my wrists I was told it was good to rest them using splints at night when in flare. As I couldnt write so started to use keyboard and was using the splints as a support and was extremely painful but thought I was doing right. Now looking back the reason why my wrists and hands were hurting was because the splints were making it worse even though I had a larger splint to accommodate the swelling. So thanks for the post I will now just stop activity instead of trying to finish a task (so frustrating). By the way i used these tennis wrists supports (flannel type tube) as I thought they were more discrete outside as hate the bit NHS splints but OT told me not too as they were too tight and making it worse when I complained about my wrists. My biggest moan is the inconsistency of advice from OT I have had since being diagnoses. I know that RA is different to each individual but for crying out load if someone whose RA predominately effects the wrists surely they can give a better management strategy from the start. I was also told not to exercise my fingers and then told I have to! Also if anyone has tingling fingers or dead hands which I have had it helps not to lean or bend the elbow! So I agree that the forum is a mine of info in getting tips how to manage our illness. Thanks for the message, your thoughts are of great help. When I have been wearing the " stretchy bandages " it felt like it was making the inflamation more painful and no doubt it was its so difficult to get the balance, it was very interesting what Fiona has said ( posting after your s ) about carpel tunnel and electrical testing I will discuss this with my rheumy when I go back in month or so. Take care Julia
|
|
Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
|
FIONA752 wrote:Hi all! 'Just had to say that anyone experiencing severe wrist/hand pain with eventual numbness needs ELECTRICAL TESTING for CARPEL TUNNEL SYNDROME. I had to wait years for this test, wearing all the dreary miserable splints, day and night, in agony for a lot of the time! I had each wrist operated on seperately, 8 months apart, under local anaesthetic and it has changed my life! Prior to the surgeries, I could barely post on this site because of the pain when typing, etc. If there is any chance that a persons pain is being caused by Carpel Tunnel problems, it is so treatable with surgery and can be repeated more than once should it ever come back! Sometimes I think that because we have R.A they forget to check us out for Carpel Tunnel problems! I even had developed finger clawing because mine was so advanced! All better after surgery and loook more like a normal person again. best wishes, Fiona Thanks Fiona for your advice it really has been very helpful, as I have just mentioned in the above message I will certainly investigate fully with the hospital as I can see the connection. It is quite incredible how much good advice you obtain on the forum, although being new to RA I feel you can be left in the dark, about certain issues,by the professionals whose judgement you trust so much. Sending my best wishes Julia
|
|
|
|